Keeping Keto Sweet

The best and worst low carb sweeteners for keto kids. How to keep Keto sweet and have your child eat tasty treats on the Ketogenic Diet.

The general advice given to parents of Keto kids by their dietitian in regards to sugar alcohols and artificial sweeteners is: “Use With Caution” and “Avoid Altogether Until Seizure Control”!

Soooo, it can be a bit confusing on how exactly to proceed in incorporating sugar alcohols and artificial sweeteners into everyday use and how to cut through all the marketing hype on low carb products so you only use foods that won’t effect blood-sugar levels or digestive systems. Continue reading “Keeping Keto Sweet”

So Delicious Keto Smoothie

Enjoy this So Delicious Smoothie with your keto kid. None of the juice or high-carb fruits. Rich and creamy. 3:1 ratio = Yummy!

Back before Drake started the Keto diet I loved whipping up fruit smoothies for everyone — and to be honest that was the only reason I used my ninja food processor. After a year of mainly using it to grind nuts, I am back in the smoothie making business with this simply recipe! This smoothie does not disappoint — it is rich and creamy and goes down smoothly (wink). Perfect for hot summer afternoons or an after school treat.  Continue reading “So Delicious Keto Smoothie”

Keto Coffee Cake

Low-carb, high-fat coffee cake you can enjoy with your keto kid. 3:1 ratio.

 

Baking day yesterday resulted in a new recipe that came out better than expected, Keto Coffee cake! It’s a perfect 3:1 ratio snack all on it’s own! and super yummy when paired with berries and cream. I’ve been eating it more than Drake lately (shhh, don’t tell him) while he’s at school. It’s a perfect 3 o’clock-pick-me-up snack with a cup of English breakfast tea or coffee. It almost rivals real a Coffee Cake or Almond Danish. Continue reading “Keto Coffee Cake”

Happy Rare Disease Day – Love Some1 with Glut1!

The annual Love Some1 with Glut1 is underway! From Valentine’s Day to Rare Disease Day (February 29th), the campaign raises money to support the important and impactful work of the Glut1 Deficiency Foundation and its mission of educating others, increasing awareness of and advocacy for Glut1 Deficiency Syndrome. click here to donate

I love someone who is rare!

And I love the fact that Glut1 Deficiency has an effective form of treatment despite the fact that it is so rare! This is why raising awareness and getting kids diagnosed early is so crucial. Three neurologists with years of experience saw Drake and none even thought of Glut1 Deficiency as a possibility. Drake wasted three crucial brain-growing years with the wrong diagnosis, to the point of it causing microcephaly, and still no one even thought of Glut1 Deficiency. That needs to change. Donating to G1 Foundation and to the cause of other rare diseases will help everyone get diagnosed faster and possibly lead to better treatments and a cure. Continue reading “Happy Rare Disease Day – Love Some1 with Glut1!”

Short Cuts

Top 10 list of sanity-saving short cuts for the Ketogenic diet. For the Keto Kid on the Go!

This post is dedicated to all the stressed out Mamas (and Papas and Grandparents) who are running around to three+ grocery stores in order to buy all the food on their keto shopping list. Who are reading the nutrition labels to find that one cream cheese with the most fat, who are scouring the Web for ideas, insights and new recipes, and who are looking for short cuts to this labor-intensive and super-expensive diet! There is nothing quite like the joy of finding a product in the store that your Keto kid can just simply eat!

I am writing this post on the one-year anniversary of Drake’s Keto diet hospital initiation experience ­(Facebook kindly reminded me of this memory in my newsfeed) and it got me thinking of how overwhelmed and confused I was at first. We had over a month between Drake’s diagnosis and the hospital stay and it took that whole time for Ken and I to process the implications of the Keto diet and to realize that every single food Drake ate needed to be adjusted or no longer eaten. Continue reading “Short Cuts”

TSA Approved Cooler Bag

Traveling by plane on a strict Ketogenic diet can be very challenging. But with a little bit of extra planning, preparation and work, the security check and flight can go relatively smoothly. Fingers crossed for no delays!

Traveling with young kids can be logistically taxing in the first place, and then adding in a restrictive diet can make it seem downright impossible, but it can be done with these tips.  Continue reading “TSA Approved Cooler Bag”

Out to eat as a family

When we first learned how rigid this diet can be we immediately came to the conclusion that we would have to hide in our house, stop going out to eat, limit our travel, and protect Drake from being exposed to a world full of off-diet choices. I despaired that Drake would be a food jealous, food unconfident, limited in his life experiences, sad little kid. Maybe I was a little bit overdramatic at first.

So after a few months we were happy to find out that we could still take Drake out to eat again if we were careful and managed expectations. We no longer went to our favorite kid-friendly restaurants, a Mediterranean Bistro and a Mexican Restaurant, but instead favored places with a really good hamburger. You can get a burger at a grill with no bun and it is generally pretty safe and only cooked in oil (but ask your sever if you have any concerns about hidden carbs). We stress to the server that Drake can’t take a bite without two sides of mayonnaise, and that usually does the trick for bringing the all important mayo with the meal. Continue reading “Out to eat as a family”

Rationalization is a powerful thing

Glut1 kid, Drake Lane, thrives on the high-fat, low-carb, low-protein Ketogenic diet. But how strict should a six year old kid who does not have seizures be?

To some degree the Glut1 Deficiency kids who don’t have epilepsy or seizures are the kids who you can experiment on; who can be the guinea pigs for doing things with less rigidity and more flexibility. We keep asking ourselves, how strict should we be with a recovered wobbly little kid who does not have seizures, who will not loose seizure control, and who will not have breakthrough seizures. After an initial period of adjustment we decided to go off script a bit. Rationalization is a powerful thing.

We do this diet within a community — within the dietitian’s guidelines, but then we understandingly find ourselves completely on our own, customized to Drake, tweaked to what works for him and for our family. We find ourselves making our own roadmap of how strict we need to be. For example, having Drake eat more often and not at regimented times, helps him maintain his energy level and his mood. This diet is supposed to be a natural appetite suppressant, but no amount of advice from medical experts or online message boards ultimately deals with the stuff we have to live through. Continue reading “Rationalization is a powerful thing”