Here is a link to a very hand guide on what procedures your Glut1 kid should follow while on the ketogenic diet.
Standard procedures for your Glut1 Kid:
It details which routine lab work to do, what daily supplements to take, and how to check for ketones. Glut1 kids and adults will be on some form of the ketogenic diet for years and even decades, so the standard procedures will also change over time — as well as the frequency of doctor’s visits. Continue reading “Maintaing the Keto Diet”
I get this question all the time “Do Ken and I eat Keto too?” Yes! We follow the Ketogenic diet too, off and on, and see lots of benefits from it! We both have lost weight, we have more energy (especially mid-day when we used to have to drink coffee or soda just to stay awake) and we can often skip meals without too much difficulty. At first we did it as a way to lend support to Drake and to experience what he was going through. But now we do it as a way to stay healthy and energized.
One of the misconceptions we have noticed with the Ketogenic Diet is that people think it is high in protein; like Atkins or Paleo. But it is actually high in fat, and low to moderate in protein. You will have trouble getting into ketosis if you eat too much protein. 70% of our calories come from fat; the other 30% come from protein plus carbohydrates. We generally avoid refined and processed carbohydrates, starchy vegetables, or high-carbohydrate fruits. Higher fat meats are better for getting into ketosis, like non-lean cuts of pork or beef. This would seem like a recipe for heart problems and clogged arteries, but Ken and I have both recently had blood work done, and our cholesterol and blood pressure levels have not increased. And recent research supports our experience. Continue reading “What do Parents of Keto Kids Eat?”
Ketogenic Foods by Ratio.
The classic ketogenic diet of a 3:1 ratio means that for every 3 grams of fat you eat, you can eat 1 gram of carbohydrate plus protein. So 3:1 means that for every 4g you eat, 3g of that are fat and the remaining 1g is carbs + protein. That works out to eating over 75% fat. Wow, that is a lot of fat … and math! So where does all that fat come from? What do keto kids actually eat? Sticks of butter, slices of bacon, glasses of heavy cream? Well, yes and no.
There are three main types of fats in foods: saturated fat, monounsaturated fat and polyunsaturated fat. Eating foods that are high in these fats (yes, even saturated fat) is the goal of the ketogenic diet. Eating enough fat in the right combination (or ratios) with carbohydrates and proteins, is how you get into ketosis. Eating low-carb foods is equally key, and sometimes one can get fixated on the question “how many grams of carbs are allowed for this meal???” But simply eating low carbohydrate foods is not enough to get into ketosis. This is why parents of keto kids need to be very specific about the foods their kids eat, and precise about calculating the macro nutrients. Continue reading “What Do Keto Kids Eat?”
I have recently discovered hemp seeds and I am a bit excited about the health benefits of them! They are incredibly nutritious, high in fat, low in carbs, and a good source of protein and fiber. They have a mild nutty taste and are full of Omega 3 and 6 fatty acids. They mix well with macadamia nuts and create a soft chewy texture. I found these to taste soft and cake like. These make a great “on the go treat” or snack for the lunchbox. Continue reading “Brownie Bites 3.5 : 1”
We are celebrating over one year of Glut1 blogging with a blog refresh. We are updating Drake’s Glut1 Story to include “what early warning signs to look for” and “what early interventions have helped”.
This past week I have been updating our blog!
You will notice it is newly organized, categorized and labeled. Wahoo! Hopefully this will making reading and searching this site easier. I’ve also added a navigational menu with pages that explain what Glut1 Deficiency is and what early signs to look for on the movement disorder side of this rare disease. Plus info on what the Keto diet is and a little about ourselves excerpt.
Thank you to all who have followed Drake’s Glut1 Journey so far, and thank you to those who have reached out to me for advice and support. We are so grateful that we are helping to spread the word about Glut1 Deficiency from a mild kids unique viewpoint.
We will continue to tell Drake’s story and add to his “Glut1 Journey”. And we will also continue to write about our experience of doing Keto on a kid long-term — what differences it has made along the way and what adjustments we will make over time. Along with hands on practical advice from a “Mom & Dad in the trenches” perspective.
Teal Pumpkin Project for Keto Kids! Make Halloween special for kids on restrictive diets with non-food treats!
We actually didn’t pay too much attention to the Teal Pumpkin Project last Halloween (the first Halloween for Drake on the Keto diet) because I assumed it was solely for kids with severe food allergies to still be included in the trick-or-treating experience by having a separate candy bowl of nut-free and dairy-free candy.
But of course for Keto kids, all Halloween candy and chocolate is hands-off.
Continue reading “Halloween Teal Pumpkin Project for Keto Kids”
The best and worst low carb sweeteners for keto kids. How to keep Keto sweet and have your child eat tasty treats on the Ketogenic Diet.
The general advice given to parents of Keto kids by their dietitian in regards to sugar alcohols and artificial sweeteners is: “Use With Caution” and “Avoid Altogether Until Seizure Control”!
Soooo, it can be a bit confusing on how exactly to proceed in incorporating sugar alcohols and artificial sweeteners into everyday use and how to cut through all the marketing hype on low carb products so you only use foods that won’t effect blood-sugar levels or digestive systems. Continue reading “Keeping Keto Sweet”