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Glut1 Deficiency Syndrome – Movement Disorder Type

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About the Lane’s

About this blog

Raising Awareness of Glut1 DS Ataxia

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Drake’s Glut1 journey started at the age of 3 with episodes of Ataxia and Dyskinesia. At the age of 6 he had genetic testing done — and we all got a big surprise, an extremely rare diagnosis: Glut1 DS. Now at the age of 8 Drake is 2 years symptom-free with the ketogenic diet.

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Recent Posts

And so it Begins: Movement Episodes Begin Again
Taking MAD on Vacation!
A Quiet Anniversary
Chocolate Pecan Breakfast Cookie 4 : 1
Keto Cheese and Crackers

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Santini on Keeping Keto Sweet
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Debra Lane on Glut1 Deficiency Diagnosis
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