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Glut1 Deficiency Syndrome – Movement Disorder Type

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Drake Lane age 5

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Posted on November 8, 2017November 8, 2017 Full size 1000 × 617

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Welcome

Drake’s Glut1 journey started at the age of 3 with episodes of Ataxia and Dyskinesia. At the age of 6 he had genetic testing done — and we all got a big surprise, an extremely rare diagnosis: Glut1 DS. Now at the age of 8 Drake is 2 years symptom-free with the ketogenic diet.

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